Introduction

Thirty-four-year-old Colin Martell from Stittsville faces the harrowing realities of early-onset Huntington Disease, a genetic disorder that has drastically impacted his ability to live independently. Currently residing in a long-term care facility, Colin grapples with feelings of isolation and longs to return to his family's home where he can receive palliative care as his condition advances.

Understanding Huntington Disease

Huntington Disease, which typically manifests symptoms between ages 35 and 55, can also afflict individuals in their youth (known as Juvenile HD) or later in life (Late Onset HD). With no existing treatments to halt its progression, the focus remains on alleviating symptoms. Research efforts are ongoing globally, including significant initiatives in Canada, as scientists strive to discover promising therapies to combat this devastating condition.

The Martell Family's Initiative

In response to their plight, the Martell family has launched a GoFundMe campaign titled "Let’s Bring Colin Home." This initiative aims to cover legal costs associated with securing Colin's move back to his family home, as well as any necessary modifications to ensure his safety and comfort. The response has been overwhelmingly positive, with the fundraiser exceeding its original goal of $100,000, thanks to generous contributions from the community. However, the family hopes to raise greater awareness about Huntington Disease, which garners less public attention compared to more widely recognized illnesses like ALS and Parkinson's. With approximately 1 in 7,000 Canadians impacted by Huntington Disease, the Martells emphasize the urgent need for increased public discourse and understanding of the disorder.

A Family's Memories

Speaking on behalf of the family, Colin’s brother Jonathan Martell shared touching memories of their upbringing in a close-knit community. He recalled countless hours spent playing at Ralph Street Park with Colin and their brother Alex, and the strong roots established during their time at Sacred Heart High School. He praised their mother, Heather McPhee, who devoted years as Principal of a local elementary school and now stands as Colin’s primary caregiver.

Colin's Athletic Background and Health Struggles

Jonathan reflected on Colin's vibrant past as a talented athlete, stating, "He excelled in sports and was always the best at everything he did. It’s heartbreaking to see his struggle now." The first signs of Colin’s condition—the loss of balance and persistent pain—signaled the onset of the disease, which has since progressed significantly.

The Family's Connection to Huntington Disease

Tragically, the Martell family is all too familiar with the cruelty of Huntington Disease. Jonathan's brother Alex also battles the same disorder, while their father, Peter Martell, a former player for the Winnipeg Blue Bombers and the Montreal Alouettes, succumbed to Huntington Disease in 2016 at the age of 57. The family often refers to Huntington as the “devil disease” due to its cruel amalgamation of symptoms reminiscent of ALS, Parkinson’s, and itself.

Funding and Future Plans

The GoFundMe contributions are earmarked not only for legal expenses and home modifications but also to provide necessary home care support, ensuring that Colin experiences the best quality of life possible. Jonathan has reassured donors that any remaining funds after covering Colin's care will be generously donated to the Huntington Society of Canada to aid in vital research.

Conclusion

As the Martell family continues their fundraising campaign, they reaffirm their commitment to spreading awareness about the severe implications of Huntington Disease. Their mission transcends personal need; they aim to shine a light on the disorder and advocate for all those grappling with its effects. The "Let’s Bring Colin Home" fundraiser embodies their determination to honor Colin's wishes while ensuring he receives the compassionate care he deserves in the place he cherishes most—his home. Together, with the support of the community, the Martell family strives for Colin to live surrounded by love and comfort, despite the formidable challenges presented by his diagnosis.