Young-Onset Parkinson's: A Misunderstood Condition

When Sharon Hastings received her diagnosis of young onset Parkinson's disease (YOPD) at just 43, it shattered her perceptions. In 2013, at an age where most are looking towards a long life ahead, she found herself grappling with a condition often associated with the elderly.

Support Systems Make a Difference

Determined not to let her diagnosis define her, Hastings actively participates in support groups, notably in Sherbourne, Coventry. Here, she discovers a community of individuals navigating similar challenges, highlighting that YOPD affects people much younger than we traditionally believe. One inspiring member of her group was diagnosed at merely 26, underscoring the diverse faces of this condition.

Reclaiming Life Through Activity

Hastings emphasizes the importance of community support. The resources available today have drastically improved, allowing her to engage in activities like Parkinson's dance classes, walking football, and wellness singing groups—forms of ‘medicine’ that offer her joy and fortitude.

The Struggles Are Real: A Daily Battle

Yet life with YOPD is undeniably tough. Hastings describes it as a daily challenge, with symptoms affecting her mobility and muscle control. "It's really difficult," she admits, explaining how anxiety can exacerbate her symptoms and lead to unpredictable muscle fluctuations. "One moment, I’m okay, and the next, everything changes."

A Family Legacy: The Genetic Question

Interestingly, Hastings isn't alone in her battle. Both her father and other family members have faced Parkinson's at various ages, sparking questions about a potential genetic link. Yet medical professionals have dismissed this, stating they're simply an 'unlucky family,' reiterating that YOPD is not primarily genetic.

Seeking Freedom: Shay Cannon's Journey

Shay Cannon, another member of the support group, was diagnosed at only 26. Initially bewildered by his condition, he thought shaky hands were a sign of an overactive thyroid, only to discover he had Parkinson's. After needing to quit his job at 47, Cannon transformed this setback into a fresh start, embarking on adventures across Europe in his motorhome, carefully timing his travels according to his symptoms. "Parkinson's has not changed who I am," he asserts, emphasizing his resolve to enjoy life despite the challenges.

A Call for Awareness: Changing Perceptions of Parkinson's