A Game-Changer for Families in Need

In a world where waiting for essential healthcare services can feel like an eternity, The Roxi Foundation, based in Swindon, Wiltshire, has stepped up to help families navigate the daunting wait for autism and ADHD assessments. Established after a young girl’s challenging journey to diagnosis, this newly formed charity is making waves in the community.

A Father’s Realization Sparks Change

Matt Pound, father of Roxi, recognized the struggles his family faced and realized they were not alone. "If we're struggling that much, other families must be too," he said, igniting the foundation’s mission to provide support for those battling similarly long waiting lists.

Unlocking a New Future with Timely Assessments

The Roxi Foundation gives families the chance to apply for grants that fund private assessments—an essential step that can unlock a world of support and resources. For families like Julian's, this help can truly transform lives. His daughter Hannah, who endured a painful two-year wait for an assessment, was funded by the foundation to receive a timely diagnosis. "We came back with a different child," Julian expressed, highlighting the dramatic improvement in Hannah's communication and engagement.

Battling the Burden of Long Waits

With significant NHS delays for autism and ADHD assessments affecting families nationwide, the plight is real. The Roxi Foundation, albeit operating with limited resources, aims to bridge this gap. They've successfully funded assessments for three children to date, but the need far exceeds this. With high costs averaging £3,900 per assessment and 19 inquiries piling up—which would total upwards of £20,000—the challenge is daunting.

A Rallying Cry for Support

Determined to make a difference, local fundraising efforts have already accumulated £7,000, with a bold target of £20,000 set for 2025. As Mr. Pound observes, many families are "at their wits' end," desperately seeking guidance amidst the chaos. He emphasizes that the Roxi Foundation is not about criticizing the NHS; rather, it’s a crucial support network during difficult times.

A Hopeful Path Forward

The NHS Integrated Care Board is also responding to this ongoing issue, exploring ways to enhance access to services through new neurodevelopmental pathways designed for earlier intervention and better support options. In the interim, families are reminded that they need not wait for a diagnosis to initiate necessary adjustments in schools. This vital information can empower families to take proactive steps while they await formal assessments.

The impact of The Roxi Foundation continues to grow, inspiring other families to join the fight for timely diagnoses and better support systems.