Inspiring Turnaround for John Haldi

In an inspiring turn of events, John Haldi, a resident of Liberty Lake, has experienced a remarkable halt in the progression of his early-stage Alzheimer's disease thanks to a local drug trial featuring Aduhelm. Starting in June 2020, Haldi participated in monthly infusions as part of the study, and just three years later, in July 2023, he met none of the criteria necessary for an Alzheimer's diagnosis.

Doctor’s Insights

Neurologist Dr. David Greeley, who has overseen Haldi's treatment, reported that the patient’s amyloid levels—specifically beta-amyloid, a protein fragment that aggregates to form plaques, commonly associated with Alzheimer’s—were now normal. Dr. Greeley noted that while Haldi is one of the fortunate participants, the outcome of the trial varied for others involved.

Aduhelm and Other Treatments

Aduhelm, while promising, has not received approval from the FDA for public sale. However, the agency has authorized two similar drugs, Leqembi and Kisunla, which promise disease-modifying effects by eliminating beta-amyloid from the brain. Though these treatments come with risks and potential side effects, they have opened new avenues for Alzheimer's patients seeking improved quality of life.

A New Lease on Life at 85

Now at 85, Haldi is living anew—traveling, solving puzzles, and even playing trombone with the Project Joy Orchestra. Despite his lingering short-term memory challenges, he can stay home independently, which his wife Pat praises as a significant improvement. Just recently, Haldi demonstrated his cognitive recovery when he accurately reminded Pat of their new bank card PIN, a feat that thrilled her.

Planning a Future Together

The Haldis are now planning trips to Mexico and an Alaskan cruise, symbols of a life once clouded by uncertainty. Pat emphasizes that their story, while not typical, can offer hope, especially as they advocate for early Alzheimer’s diagnosis among others.

Reflections on Their Journey

Reflecting on their journey since joining an Alzheimer's support group in 2015, Pat recalled the alarming advice she received to start preparing for long-term care. Back then, John was diagnosed with early brain atrophy dementia, a daunting label to bear. But now, Pat is relieved that they’re able to keep their household functioning and maintain some semblance of normalcy; John can fix his breakfast and even mow the lawn.

Improved Memory and Communication

Remarkably, John’s memory faculties have shown improvement. For instance, he has begun effectively communicating his needs when left alone, a sharp contrast to his previous condition. Although he still grapples with short-term memory loss, Pat has found workable strategies, such as leaving notes for him.

Strengthening Community Connections

The couple has fostered lasting connections through their support group, which has sadly diminished over the years as many members have succumbed to the disease or required memory care. John continues to engage socially, often dining with friends post-orchestra practice and participating in various activities such as balloon badminton.

A Joyful Musical Journey

Haldi’s music background as a former math teacher is a source of joy; he has been playing the trombone since fifth grade and participates weekly in performances at retirement homes. His life story is interwoven with Pat's as they share nearly four decades of marriage and numerous adventures together.

Advancements in Alzheimer's Diagnostics

Dr. Greeley's practice is also at the forefront of Alzheimer’s diagnostics, offering a blood test that, despite lacking insurance coverage, could facilitate early identification. Other procedures include a lumbar puncture or an amyloid PET scan, though those options come with their own implications.

A Beacon of Hope

Haldi's journey, as Dr. Greeley articulately points out, is extraordinary. From being on a decline to scoring near the top on cognitive assessments, Haldi’s experience does not just defy the odds; it serves as a beacon of hope. Imagine being 84 years old, still actively engaged in life, and recognized for both your skill and companionship! John Haldi is living proof that advancements in medical science have the power to change lives, and he continues to inspire those around him.